On May 17 my son had a cynotic episode immediately after an appointment with our genetic specialist. The day before his birth on April 22, he diagnosed with achondroplasia, the most common form of dwarfism. In spite of the difference, and even at times because of it, we are celebrating the life of our new son. However, there are complications that come with this unique characteristic, including small structures that create obstructions in his airways.
We have now been in the hospital for 12 days and fortunately are approaching solutions and assessing possible treatments. As the blog is on hiatus, I covet your prayers for him and for us as we go through this difficult time.
Feel free to ask any questions you would like in the comments below. I am happy to share about what is happening in his life, what achondroplasia means, and certainly eager to hear any support and encouragement you may like to share.